Hemophilia Toolkit

Tools & Resources: For Employers

Use these relevant and up-to-date resources to tackle the issues and challenges employers face when creating a strategy for managing bleeding disorders in a covered population.

Research/Reports

Panelists Discuss Community-Based Approaches to Mitigate Costs, Improve SDOH Outcomes American Journal of Managed Care (AJMC), October 28, 2020
High-Cost Claims and Injectable Drug Trends
Sun Life Financial Stop Loss Research Reports
2022 Report
2019 Report
Institute for Clinical and Economic Review final reports on Hemophilia A
Hemophilia A with inhibitors October 2020
Hemophilia A without inhibitors November 2020
Population‐based surveillance of Hemophilia and patient outcomes in Indiana using multiple data sources Hemophilia, 29 March 2019
Hemophilia: Treatment Landscape, Costs and Disease Management
AJMC, April 26, 2018
Hemophilia Burden of Disease: A Systematic Review of the Cost-Utility Literature for Hemophilia
Journal of Managed Care & Specialty Pharmacy, July 2018
Hemophilia Management via Data Collection and Reporting: Initial Findings from the Comprehensive Care Sustainability Collaborative
Journal of Managed Care & Specialty Pharmacy, January 2017
Treatment Adherence in Hemophilia
Patient Preference and Adherence, September 2017
Burden of illness:
Journal of Medical Economics, June 2015
Prevalent inhibitors in Hemophilia B subjects enrolled in the Universal Data Collection database. Hemophilia, January 2014
An Actuarial Study of Hemophilia: Implications for Commercial and Medicaid Managed Care Plans
Milliman Inc., October 2013
The epidemiology of inhibitors in Hemophilia A: a systematic review. Hemophilia, July 2003
Hemophilia: Articles & Key Findings
Centers for Disease Control

Hemophilia Alliance

Overview: What We Do
Services and Tools
- Hemophilia Treatment Centers (HTC) Operations and Organizational Management
- HTC Group Purchasing
- Payer Relations
- Advocacy
- Legal & Compliance

National Hemophilia Foundation (NHF)

Home page
National Hemophilia Foundation
Home Page
Comprehensive Care Sustainability Collaborative (CCSC)
Comprehensive Hemophilia Management:
A Payer’s Guide to the Hemophilia Comprehensive Care Model
Medical & Scientific Advisory Council (MASAC)
Managed Care Hemo: Resources, provided by the NHF
National Hemophilia Foundation on Accumulator Adjustment Programs (CCSC)
Hemophilia Response Pathway for Employers
Video: Hemophilia Treatment Centers: The Value of the Integrated Care Model in Creating Positive Outcomes
Webcast: Copay Accumulators and the Impact on High-Cost, Rare Diseases