Research/Reports

• High-Cost Claims and Injectable Drug Trends
  Sun Life Financial Stop Loss Research Reports
  2018 Report
  2019 Report
• Hemophilia: Treatment Landscape, Costs and Disease Management
  AJMC, April 26, 2018
• Hemophilia Burden of Disease: A Systematic Review of the Cost-Utility Literature for Hemophilia
  Journal of Managed Care & Specialty Pharmacy, July 2018
• Hemophilia Management via Data Collection and Reporting: Initial Findings from the Comprehensive Care Sustainability Collaborative
  Journal of Managed Care & Specialty Pharmacy, January 2017
• Treatment Adherence in Hemophilia
  Patient Preference and Adherence, September 2017
• Burden of illness:
  Journal of Medical Economics, June 2015
• An Actuarial Study of Hemophilia: Implications for Commercial and Medicaid Managed Care Plans
  Milliman Inc., October 2013
• Population‐based surveillance of haemophilia and patient outcomes in Indiana using multiple data sources
  Haemophilia: The Official Journal of the World Federation of Hemophilia, March 2019
• Hemophilia: Articles & Key Findings
  Centers for Disease Control
• Employer Action Brief: Evolving Challenges in hemophilia A

Hemophilia Alliance

• Overview: What We Do
• Services and Tools
  
  • Hemophilia Treatment Centers (HTC) Operations and Organizational Management
  • HTC Group Purchasing
  • Payer Relations
  • Advocacy
  • Legal & Compliance

National Hemophilia Foundation (NHF)

• Home page
  National Hemophilia Foundation
• Home Page
  Comprehensive Care Sustainability Collaborative (CCSC)
• Comprehensive Hemophilia Management:
  A Payer’s Guide to the Hemophilia Comprehensive Care Model
• Medical & Scientific Advisory Council (MASAC)
• Managed Care Hemo: Resources, provided by the NHF
• National Hemophilia Foundation on Accumulator Adjustment Programs (CCSC)
• Hemophilia Response Pathway for Employers
• Video: Hemophilia Treatment Centers: The Value of the Integrated Care Model in Creating Positive Outcomes
• Webcast: Copay Accumulators and the Impact on High-Cost, Rare Diseases

Hemophilia Federation of America

• Home page
• Word from Washington
• Free Resources for Patients & Families

Centers for Disease Control & Prevention (CDC)

• Data and Statistics on Hemophilia
• Hemophilia Treatment Centers (HTCs)
• Hemophilia Treatment Centers: Directory
• Do the 5!
  Awareness campaign funded by the CDC focusing on five strategies to help people with hemophilia live a longer and healthier life
• Free Educational Materials on Hemophilia