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High-Cost Claims and Injectable Drug Trends
Sun Life Financial Stop Loss Research Reports
2018 Report
2019 Report
Hemophilia: Treatment Landscape, Costs and Disease Management
AJMC, April 26, 2018
Hemophilia Burden of Disease:
A Systematic Review of the Cost-Utility Literature for Hemophilia
Journal of Managed Care & Specialty Pharmacy, July 2018
Hemophilia Management via Data Collection and Reporting:
Initial Findings from the Comprehensive Care Sustainability Collaborative
Journal of Managed Care & Specialty Pharmacy, January 2017
Treatment Adherence in Hemophilia
Patient Preference and Adherence, September 2017
Burden of illness:
Journal of Medical Economics, June 2015
An Actuarial Study of Hemophilia:
Implications for Commercial and Medicaid Managed Care Plans
Milliman Inc., October 2013
Population‐based surveillance of haemophilia
and patient outcomes in Indiana using multiple data sources
Haemophilia: The Official Journal of the World Federation of Hemophilia, March 2019
Hemophilia: Articles & Key Findings
Centers for Disease Control
Employer Action Brief:
Evolving Challenges in hemophilia A
Hemophilia Alliance
Overview: What We Do
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National Hemophilia Foundation (NHF)
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Comprehensive Care Sustainability Collaborative (CCSC)
Comprehensive Hemophilia Management:
A Payer’s Guide to the Hemophilia Comprehensive Care Model
Medical & Scientific Advisory Council
(MASAC)
Managed Care Hemo:
Resources, provided by the NHF
National Hemophilia Foundation on Accumulator Adjustment Programs
(CCSC)
Hemophilia Response Pathway for Employers
Video:
Hemophilia Treatment Centers: The Value of the Integrated Care Model in Creating Positive Outcomes
Webcast
: Copay Accumulators and the Impact on High-Cost, Rare Diseases
Hemophilia Federation of America
Home page
Word from Washington
Free Resources for Patients & Families
Centers for Disease Control & Prevention (CDC)
Data and Statistics on Hemophilia
Hemophilia Treatment Centers (HTCs)
Hemophilia Treatment Centers: Directory
Do the 5!
Awareness campaign funded by the CDC focusing on five strategies to help people with hemophilia live a longer and healthier life
Free Educational Materials
on Hemophilia
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